How to treat porphyria?

summary

When my child was five years old, a lot of rashes and even ulcers suddenly appeared on his skin. At that time, I was in a hurry and immediately sent the child to a nearby hospital for treatment. As a result, the doctor said it was hematoporphyria, but after treatment, the child soon recovered. So, let me share my treatment experience with you.

How to treat porphyria?

First: at that time, the child had a lot of rashes, and even ulcers. When he came to the hospital, the doctor took a look at the child's skin, urine test and ECG examination. The urine was often red. Combined with the child's skin condition, the doctor said it was porphyria, and gave targeted treatment.

Second: the doctor also gave some oral medicine β- Hu Luo vertigo, told me to take on time and according to the amount of children, this is conducive to the recovery of the disease, but also pay attention to diet. In this way, a month later, the child's rash disappeared, the skin is not itchy, after the doctor agreed, we were discharged.

Third: there must be no sunshine and trauma during the treatment, otherwise the disease will worsen. For the symptoms of skin rash, the doctor gives dihydroxyacetone and styrofoam cream, which is for external use. After the child uses it, it seems that the skin is not so red, and the spots also fade. At the same time, children in the ward are also wearing protective clothing to avoid the sun and other radiation.

matters needing attention

First of all, we need to eliminate the possible inducements, including stopping G9 drugs that may aggravate the disease, avoiding sunlight and using sunscreen agents. Delayed type skin porphyria can be treated with hydroxychloroquine and bloodletting if necessary. Erythropoietic protoporphyria